Exhausted doesn't even begin to describe it! First of all, thank you so much for your prayers, calls, texts, and encouragement. To our NYC family, thank you for walking, feeding and looking after Bess, for bringing us food, and for even bringing Lucie her extra milk from our fridge! We're so humbled by your willingness to care for us.
Lucie has had a day filled with a lot of sleep. The doctors believe she most likely has a virus of some sort and needs extra support to fight it since she's so little. They have no way of confirming how she got the virus, and suggest it was probably just because she is still such a little baby living in the real world with an increased risk of catching any and every thing. They confirmed that taking her out and about in our neighborhood to places to eat and to the park every now and then were not to blame, especially since she had her first round of vaccinations.
Lucie slept from midnight to about 9am Thai morning and has been receiving nutrients through an IV. She has taken a little bit of milk a couple of times throughout the day, and has been able to tolerate it which is encouraging.
She's coughing a lot and has had several Brady's and Desats, all self limiting (meaning she bounces back on her own and doesn't need to be assisted in anyway, unlike what happened at the doctor's office yesterday when she went completely pale and had to be "snapped out" of the episode by getting a sternum rub and by getting flicked on her feet extra hard by her Daddy). For now, she's also getting a tiny bit of oxygen assistance with something called "blow by", they just puff O2 near her face to give her extra support, she does not have any nasal prongs in her nose or anything like that. They aren't giving her medicine since they are treating this as a virus. If she starts to perk up and get better, then they will be more certain that this is a virus and not some sort of chronic lung impairment that would have more serious and permanent impacts on her.
Originally, it looked like Lucille would be observed for 48 hours and then potentially discharged. Now, it looks like we'll be making ourselves cozy here until Lucie no longer needs oxygen assistance and can take all of her bottles again. Once she can do those things, we will be on a two day countdown, where we will be discharged if she has no issues or episodes in that two day period. Sound familiar? It's so hard to be going through this again, so like we said, thank you for the prayers and encouragement.
With love,
Drea, Rob, Lucie and Bess
Our little champ getting her chest X-ray yesterday in the ER without complaining.
Mommy comforting Lucille while being transported.
Settling in to her crib in the PICU.